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Sharing a Patient Summary with a healthcare provider

Related Use Case

Patient Summary sharing on a patient-level scale

Scenario context

One possible way in which the patient may want to distribute the information is to give it to a new health professional on the occasion of a new medical encounter, whether this intervention is scheduled or unscheduled. This step is relevant only if the health professional does not, for some reason, have access to the patient summary. NOTE from epSOS: “It is important to note that the patient access service is a national prerogative. As such, neither functionality nor requirements thereto are regulated by epSOS”. (quote from D4.E.1)

Actors/Roles

  • PHR System
  • NCP-A (National Contact Point A, own country)
  • NCP-B (National Contact Point B, other country)
  • Translation Service

Transactions

  • Patient identification
  • Patient Summary retrieval

Technical process flow

  1. Patient requests information about Patient Summaries via NCP-B using (for example) his/her PHR System
  2. Patient is authenticated by the NCP-B
  3. Patient requests Patient Summary from country A
  4. NCP presents selected Patient Summary
  5. Translation of selected Patient Summary in country A is made available by a Translation Service

Associated profiles, standards, and HL7 FHIR Implementation guides

  • Policy: —
  • Care process: —
  • Information: XPHR, RTM (translation)
  • Infrastructure: XDS (Consumer), ATNA, CT, XCA
  • Access control: BPPC, XUA(++)

Possible issues

  • Document management: when the HCP makes a copy of the Patient Summary, is the provenance of that document safeguarded?
  • How to determine that the patient is who he says he is (authentication)
  • Does patient’s authentication provides same level of trust and security of HCP’s authentication
  • For more issues/disadvantages of patient access please see D3.2.2. of epSOS

Implementation examples